| Forum |
Topics |
Posts |
Last Post |
| Loeys-Dietz syndrome - General |
|
 |
Introductions
Please feel free to introduce yourself and/or your family!
|
96 |
619 |
Fri Nov 13, 2009 11:07 am Beth  |
 |
Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
|
92 |
531 |
Mon Nov 16, 2009 1:04 am JoAnn1  |
 |
LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
|
13 |
49 |
Sun Sep 20, 2009 12:53 am Stacy  |
 |
LDS updates
What is the most recent information available about LDS?
|
1 |
1 |
Thu Apr 03, 2008 9:46 am Gretchen  |
 |
Social concerns
|
5 |
15 |
Wed Sep 30, 2009 11:52 pm Sarah G  |
 |
LDSF updates
Updates from the LDSF
|
13 |
19 |
Sat Apr 04, 2009 1:04 am Beth  |
 |
Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
|
6 |
35 |
Sun Sep 06, 2009 7:51 pm Jojobanono  |
 |
Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
|
30 |
173 |
Tue Nov 10, 2009 3:45 pm tch225  |
 |
Fundraising
A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!!
|
2 |
8 |
Sat Jun 20, 2009 5:51 pm Stacy  |
 |
PREGNANCY
We've moved all the pregnancy issue posts here!
|
5 |
32 |
Fri Oct 16, 2009 7:24 am Julia77  |