| Forum |
Topics |
Posts |
Last Post |
| Loeys-Dietz syndrome - General |
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Introductions
Please feel free to introduce yourself and/or your family!
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59 |
409 |
Tue Aug 19, 2008 9:36 pm
Gretchen  |
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Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
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51 |
260 |
Tue Aug 19, 2008 6:58 pm
Shazza |
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LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
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6 |
21 |
Thu May 22, 2008 12:31 pm
Doulakate |
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LDS updates
What is the most recent information available about LDS?
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1 |
1 |
Thu Apr 03, 2008 9:46 am
Gretchen |
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Social concerns
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2 |
7 |
Thu Apr 24, 2008 4:15 pm
Sue M. |
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LDSF updates
Updates from the LDSF
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9 |
15 |
Thu Jul 10, 2008 7:40 pm
Shazza |
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Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
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5 |
29 |
Mon Aug 04, 2008 10:49 pm
daredevil2041 |
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Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
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9 |
60 |
Mon Aug 18, 2008 2:49 pm
Doulakate |
