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| Loeys-Dietz syndrome - General |
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Introductions
Please feel free to introduce yourself and/or your family!
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Sun Jun 28, 2009 10:38 pm Beth  |
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Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
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Wed Jul 01, 2009 2:23 pm Steven007  |
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LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
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Fri Jun 26, 2009 12:34 pm gooddogs  |
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LDS updates
What is the most recent information available about LDS?
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Thu Apr 03, 2008 9:46 am Gretchen  |
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Social concerns
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Wed Jan 28, 2009 8:40 pm Gretchen  |
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LDSF updates
Updates from the LDSF
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Sat Apr 04, 2009 1:04 am Beth  |
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Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
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Mon Jun 29, 2009 10:13 pm StevenSkar  |
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Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
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Wed Jul 01, 2009 7:18 pm Stacy  |
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Fundraising
A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!!
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Sat Jun 20, 2009 5:51 pm Stacy  |