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The time now is Tue Feb 09, 2010 6:23 pm
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Loeys-Dietz syndrome - General  
No new posts Introductions
Please feel free to introduce yourself and/or your family!
   
104 654 Sat Feb 06, 2010 4:27 am
Steven007 View latest post
No new posts Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
   
92 579 Sun Feb 07, 2010 4:47 pm
satterfield ga View latest post
No new posts LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
   
9 35 Mon Feb 01, 2010 5:15 pm
ryanswindle View latest post
No new posts Social concerns

   
5 15 Wed Sep 30, 2009 11:52 pm
Sarah G View latest post
No new posts LDSF updates
Updates from the LDSF
   
13 19 Sat Apr 04, 2009 1:04 am
Beth View latest post
No new posts Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
   
6 35 Sun Sep 06, 2009 7:51 pm
Jojobanono View latest post
No new posts Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
   
31 179 Thu Dec 10, 2009 12:36 am
Beth View latest post
No new posts Fundraising
A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!!
   
5 12 Sun Jan 31, 2010 8:25 pm
Sarah G View latest post
No new posts PREGNANCY
We've moved all the pregnancy issue posts here!
   
6 33 Sun Dec 20, 2009 9:12 am
Noor View latest post
This forum is locked: you cannot post, reply to, or edit topics. RESEARCH
As part of our mission to foster research about LDS, the LDSF is pleased to offer the opportunity to participate in and help fund research initiatives that can range from basic science, and natural history of LDS to psychosocial and emotional issues. As well, research results help the LDSF to develop educational resources to meet the needs of those impacted by LDS. We invite you to take a look at opportunities available through the LDSF! http://www.loeysdietz.org/research.php
   
1 1 Wed Dec 16, 2009 11:18 am
Gretchen View latest post
No new posts CLINIC LISTS
The LDSF gets many requests for specialists familiar with LDS across the US and across the world. If you would like to share contact information and/or clinic information, please feel free. The LDSF does not endorse any of these physicians specifically!
   
5 8 Sun Feb 07, 2010 12:30 am
papsun View latest post
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