FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

The time now is Sat Apr 19, 2014 10:29 am
Forum Index
View unanswered posts
 Forum   Topics   Posts   Last Post 
Loeys-Dietz syndrome - General  
No new posts Introductions
Please feel free to introduce yourself and/or your family!
   
191 1115 Tue Jul 09, 2013 5:00 pm
Iluvmygirl View latest post
No new posts Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
   
237 1102 Mon Feb 17, 2014 11:07 pm
TornInHalf View latest post
No new posts General Chat
Area to chat about all experiences with Loeys-Dietz Syndrome and other general topics.
   
6 14 Sat Feb 22, 2014 9:02 pm
TornInHalf View latest post
No new posts LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
   
13 49 Sun Oct 02, 2011 5:26 pm
mchll.brlsn View latest post
No new posts Social concerns

   
8 30 Sun Aug 12, 2012 8:05 pm
Roxys_Mom View latest post
No new posts LDSF updates
Updates from the LDSF
   
19 46 Tue Mar 04, 2014 8:56 pm
TornInHalf View latest post
No new posts EUROPEAN CONNECTIONS
For European families, this is a place to post and begin connections/organization of a european community
   
2 11 Tue Jun 25, 2013 6:12 am
dustyb View latest post
No new posts Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
   
7 39 Tue Oct 19, 2010 1:39 am
bcrawford View latest post
No new posts Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
   
37 244 Thu Jun 21, 2012 1:11 am
melissatang View latest post
No new posts PREGNANCY
We've moved all the pregnancy issue posts here!
   
9 50 Mon May 20, 2013 1:46 pm
cgillajs_5 View latest post
No new posts Fundraising
A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!!
   
11 24 Thu Jun 30, 2011 12:18 pm
cfulkk61 View latest post
This forum is locked: you cannot post, reply to, or edit topics. RESEARCH
As part of our mission to foster research about LDS, the LDSF is pleased to offer the opportunity to participate in and help fund research initiatives that can range from basic science, and natural history of LDS to psychosocial and emotional issues. As well, research results help the LDSF to develop educational resources to meet the needs of those impacted by LDS. We invite you to take a look at opportunities available through the LDSF! http://www.loeysdietz.org/research.php
   
2 2 Tue Jun 21, 2011 8:18 am
Gretchen View latest post
No new posts CLINIC LISTS
The LDSF gets many requests for specialists familiar with LDS across the US and across the world. If you would like to share contact information and/or clinic information, please feel free. The LDSF does not endorse any of these physicians specifically!
   
13 24 Thu Aug 30, 2012 12:43 pm
bettyboopis2cool View latest post
All times are GMT - 4 Hours
Who is Online
Who is Online Our users have posted a total of 2750 articles
We have 951 registered users
The newest registered user is NoahHailey
In total there is 1 user online :: 0 Registered, 0 Hidden and 1 Guest   [ Administrator ]   [ Moderator ]
Most users ever online was 182 on Mon Sep 24, 2012 4:06 am
Registered Users: None
This data is based on users active over the past fifteen minutes
Log in
Username:    Password:      Log me on automatically each visit    

New posts New posts    No new posts No new posts    Forum is locked Forum is locked


© 2007-2008 Informe.com. Get Free Forum Hosting
Powered by phpBB © 2001, 2005 phpBB Group