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The time now is Thu May 23, 2013 6:35 pm |
View unanswered posts |
| Forum | Topics | Posts | Last Post | |
|---|---|---|---|---|
| Loeys-Dietz syndrome - General | ||||
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Introductions Please feel free to introduce yourself and/or your family! |
190 | 1109 | Sun May 12, 2013 2:16 pm Rachel  |
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Medical issues This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians. |
234 | 1091 | Tue May 21, 2013 3:16 pm Rukhsana Ali |
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General Chat Area to chat about all experiences with Loeys-Dietz Syndrome and other general topics. |
6 | 11 | Fri May 03, 2013 1:34 pm jdinabny |
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LDS resource needs What resources would you like to see developed for LDS? How would you like to be involved? |
13 | 49 | Sun Oct 02, 2011 5:26 pm mchll.brlsn |
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Social concerns |
8 | 30 | Sun Aug 12, 2012 8:05 pm Roxys_Mom |
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LDSF updates Updates from the LDSF |
18 | 45 | Sun Apr 21, 2013 3:15 pm Mimimoi |
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EUROPEAN CONNECTIONS For European families, this is a place to post and begin connections/organization of a european community |
2 | 8 | Thu Jan 03, 2013 10:20 am SimonsMom |
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Teen forum This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above! |
7 | 39 | Tue Oct 19, 2010 1:39 am bcrawford |
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Calendar A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc |
37 | 244 | Thu Jun 21, 2012 1:11 am melissatang |
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PREGNANCY We've moved all the pregnancy issue posts here! |
9 | 50 | Mon May 20, 2013 1:46 pm cgillajs_5 |
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Fundraising A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!! |
11 | 24 | Thu Jun 30, 2011 12:18 pm cfulkk61 |
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RESEARCH As part of our mission to foster research about LDS, the LDSF is pleased to offer the opportunity to participate in and help fund research initiatives that can range from basic science, and natural history of LDS to psychosocial and emotional issues. As well, research results help the LDSF to develop educational resources to meet the needs of those impacted by LDS. We invite you to take a look at opportunities available through the LDSF! http://www.loeysdietz.org/research.php |
2 | 2 | Tue Jun 21, 2011 8:18 am Gretchen |
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CLINIC LISTS The LDSF gets many requests for specialists familiar with LDS across the US and across the world. If you would like to share contact information and/or clinic information, please feel free. The LDSF does not endorse any of these physicians specifically! |
13 | 24 | Thu Aug 30, 2012 12:43 pm bettyboopis2cool |
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