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The time now is Thu Jul 02, 2009 9:09 pm |
View unanswered posts |
| Forum | Topics | Posts | Last Post | |
|---|---|---|---|---|
| Loeys-Dietz syndrome - General | ||||
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Introductions Please feel free to introduce yourself and/or your family! |
105 | 660 | Sun Jun 28, 2009 10:38 pm Beth  |
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Medical issues This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians. |
110 | 562 | Wed Jul 01, 2009 2:23 pm Steven007 |
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LDS resource needs What resources would you like to see developed for LDS? How would you like to be involved? |
12 | 46 | Fri Jun 26, 2009 12:34 pm gooddogs |
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LDS updates What is the most recent information available about LDS? |
1 | 1 | Thu Apr 03, 2008 9:46 am Gretchen |
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Social concerns |
3 | 8 | Wed Jan 28, 2009 8:40 pm Gretchen |
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LDSF updates Updates from the LDSF |
13 | 19 | Sat Apr 04, 2009 1:04 am Beth |
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Teen forum This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above! |
6 | 34 | Mon Jun 29, 2009 10:13 pm StevenSkar |
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Calendar A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc |
29 | 160 | Wed Jul 01, 2009 7:18 pm Stacy |
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Fundraising A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!! |
2 | 8 | Sat Jun 20, 2009 5:51 pm Stacy |
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