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| Loeys-Dietz syndrome - General |
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Introductions
Please feel free to introduce yourself and/or your family!
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Sat Feb 06, 2010 4:27 am Steven007  |
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Medical issues
This topic should be used to try and answer general medical questions and start addressing common medical issues in LDS. Please always follow the recommended suggestions/management of your physicians.
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Sun Feb 07, 2010 4:47 pm satterfield ga  |
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LDS resource needs
What resources would you like to see developed for LDS? How would you like to be involved?
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Mon Feb 01, 2010 5:15 pm ryanswindle  |
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Social concerns
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Wed Sep 30, 2009 11:52 pm Sarah G  |
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LDSF updates
Updates from the LDSF
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Sat Apr 04, 2009 1:04 am Beth  |
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Teen forum
This is a place for teens to post and respond. It is meant to be a safe place for communication for teens only. (Sorry, no parents!) Administrators of the forum will have access and supervise for safe material. If you are a teen and want access, please email Gretchen at Gretchen.Oswald@loeysdietz.org or through the private email link above!
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Sun Sep 06, 2009 7:51 pm Jojobanono  |
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Calendar
A place for people to let other families know about important upcoming dates--surgeries, hospitalizations, etc
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Thu Dec 10, 2009 12:36 am Beth  |
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Fundraising
A place to announce fundraising opportunities, brainstorm and share ideas! GO LDSF!!
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Sun Jan 31, 2010 8:25 pm Sarah G  |
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PREGNANCY
We've moved all the pregnancy issue posts here!
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Sun Dec 20, 2009 9:12 am Noor  |
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RESEARCH
As part of our mission to foster research about LDS, the LDSF is pleased to offer the opportunity to participate in and help fund research initiatives that can range from basic science, and natural history of LDS to psychosocial and emotional issues. As well, research results help the LDSF to develop educational resources to meet the needs of those impacted by LDS. We invite you to take a look at opportunities available through the LDSF!
http://www.loeysdietz.org/research.php
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Wed Dec 16, 2009 11:18 am Gretchen  |
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CLINIC LISTS
The LDSF gets many requests for specialists familiar with LDS across the US and across the world. If you would like to share contact information and/or clinic information, please feel free. The LDSF does not endorse any of these physicians specifically!
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Sun Feb 07, 2010 12:30 am papsun  |